Over €42,000 raised so far for Ava's cannabis treatment for epilepsy

October 24th, 2017 10:05 PM

By Kieran O'Mahony

Mum Vera Twomey with her daughter Ava before they began treatment in Holland.

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THE fundraising campaign for seven-year-old Ava Barry, who suffers from a rare form of epilepsy, is nearing its target of €50,000.

Ava is currently living in Haarlem in Holland with her mother Vera where her condition is improving daily as she accesses medicinal cannabis for her condition, which is known as Dravet Syndrome.

Haarlem has been the family’s temporary home since they went out there in June to ensure that Ava could access medicinal cannabis to treat her seizures.

A GoFundMe page that was set up by her parents Vera and Paul to fund their move to Holland has already raised €42,880 in just over four months.

According to Vera, Ava’s seizures have melted away.

‘She is improving day by day and is becoming more independent and enjoying daily life as never before,’ said Vera.

‘We would like to thank everyone for their support via the GoFundMe page and to those who are also holding their own fundraising events  for Ava as your support is allowing Ava to remain in Holland and experience such wonderful progress.’

Vera remains in Holland with Ava while she awaits the granting of a licence here in Ireland for Ava’s medicine and Barry remains in Aughabullogue  with  their three other children.

Ava has recently been nominated for the Share a Dream Child of Courage Award by her parents. The closing date for voting is November 25th and readers can vote for her by emailing [email protected] Meanwhile, Vera has been nominated for the People of The Year Awards, organised by Rehab.

See for more information on contributing to Ava’s fund.

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